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HIPAA Privacy Rule Adds Hurdles to
Administration of Estates

 
By Renée C. Vidal, Esquire


If you have obtained birth or death records from the Pennsylvania Department of Health's Bureau of Vital Statistics within the last few months, you have undoubtedly learned that it has become more difficult. The increase in "security" of birth and death records is a result of the Health Insurance Portability and Accountability Act (HIPAA) of 1996 which mandated the adoption of national standards for electronic health transactions, as well as Federal privacy protections for individually identifiable health information, referred to as protected health information.

In response to the HIPAA mandate, the U.S. Department of Health and Human Services enacted regulations in the form of the Privacy Rule which became effective on April 14, 2001 and required compliance by April 14, 2003 for most entities covered by the rule. The Privacy Rule applies to health plans, heath care clearinghouses, and health care providers who conduct certain health care transactions electronically. These covered entities are required to implement standards to protect and guard against the misuse of protected health information. Protected health information is information that is generally individually identifiable health information that is transmitted by, or maintained in, electronic media or any other form or medium that relates to 1) past, present or future physical or mental health or condition of an individual; 2) provision of health care to an individual; 3) payment for the provision of health care to an individual; or 4) the information identifies or provides a reasonable basis to believe it can be used to identify an individual.¹

The requirements of the HIPAA Privacy Rule apply to a state health agency, such as the Pennsylvania Department of Health, if the agency provides health benefits, operates clinics, transmits health information electronically in connection with a transaction covered by HIPAA, etc. that causes it to be a covered entity.² Because the HIPAA regulations require covered entities to evaluate practices and implement safeguards to limit unnecessary or inappropriate access to and disclosure of protected health information, obtaining death or birth certificates has become increasingly difficult for practitioners to assist clients in administering estates. A visit to the Department of Health's website³ reveals several hurdles to obtaining birth or death records for clients. To obtain birth records, the person making the request must be the person named on the record, a legal representative of that person or an immediate family member. Persons eligible to obtain death records include the legal representative of the decedent's estate, an immediate family member or an extended family member who is able to show a direct relationship to the decedent. It does not include the attorney for the estate.

These restrictions are intended to comply with the HIPAA regulations. Although there are certain circumstances under which protected health information may be disclosed,* such information is generally protected and only disclosed when authorized by the individual who is the subject of the information or that person's personal representative.** The HIPAA regulations require that a personal representative with legal authority to act be treated the same as the individual for purposes of the Privacy Rule.*** A personal representative is a person legally authorized to make health care decisions on another person's behalf or legally authorized to act on behalf of a deceased individual or the individual's estate.¹^ Thus, personal representatives include executors, administrators, persons with health care powers of attorney and parents, guardians and persons acting in loco parentis for unemancipated minors.²^

To ease procedures in administering estates, preparation of an authorization form to be executed by executors or administrators of estates will save time and hassle if death or birth records are needed. The authorization for disclosure should be written in plain language and specifically state the following:

That it authorizes disclosure of necessary birth and death records of the decedent or direct relatives of the decedent;
State the names of the persons or organizations who will receive the information;
State that the purpose of the request is for the administration of the decedent's estate;
Notify the executor/administrator of his/her right to refuse to sign the authorization;
Be signed and dated by the executor/administrator;
Include an expiration date or event (such as upon approval of the accounting or execution of a family settlement agreement);
Notify the executor/administrator of the right to revoke the authorization at any time in writing and how to exercise that right and any applicable exceptions to that right under the Privacy Rule; and
Explain the potential for the information to be re-disclosure by the recipient and no longer protected by the Privacy Rule.³^
The impact of HIPPA on the administration of estates will be an increase in the steps necessary for counsel to assist their clients in the timely administration of estates. With planning, the effect can be minimized.



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¹ 45 CFR 164.501

² 45 CFR 160.103

³ www.health.state.pa.us

* For example, disclosures of protected health information may be made without authorization from the individual or personal representative to a coroner or medical examiner for the purpose of identifying a deceased person, determining the cause of death or other duties authorized by law and to a funeral director as necessary to carry out their duties with respect to a decedent as is consistent with applicable law. 45 CFR 164.512(g)(1)-(2)

** 45 CFR 164.502(b); 164.514(d)

*** 45 CFR 164.502(g); see 45 CFR 164.510(b) for situations where a person is involved in an individual's health care, but is not expressly authorized to act on the individual's behalf.

¹^ 45 CFR 164.502(g)(2)-(4).

²^ 45 CFR 164.502(g).

³^ 45 CFR 164.508(c).


 

 

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